Research priority setting by young people with rheumatic musculoskeletal disease
نویسندگان
چکیده
منابع مشابه
Key Challenges in Rheumatic and Musculoskeletal Disease Translational Research
Biotherapeutics have greatly advanced the world of medicine, and and metabolomics for the analysis of blood and tissue has opened products such as monoclonal antibodies, fusion proteins and receptor antagonists have transformed the therapeutic armamentarium for rheumatic and musculoskeletal diseases (RMD) in the last 20 years. Biological understanding of a disease can result in novel targeted t...
متن کاملPerson-focused care for young people with rheumatic and musculoskeletal diseases: young rheumatologists' and EULAR Young PARE perspectives
In recent years, the evolution of healthcare challenged the management of people with rheumatic and musculoskeletal diseases (RMDs). From disease-centred care to person-focused care, a holistic approach along with patient empowerment about their disease, improved the physician-patient relationship and allowed to achieve better outcomes with lower healthcare costs. Nevertheless, RMDs may occur f...
متن کاملSetting research priorities to improve the health of children and young people with neurodisability: a British Academy of Childhood Disability-James Lind Alliance Research Priority Setting Partnership
OBJECTIVES To engage young people, parent carers and clinicians in a systematic process to identify and prioritise research questions regarding ways to improve the health and well-being of children and young people with neurodisability. DESIGN British Academy of Childhood Disability (BACD)-James Lind Alliance research priority setting partnership bringing together patients, carers and clinici...
متن کاملWhat do young people with rheumatic disease believe to be important to research about their condition? A UK-wide study
BACKGROUND The involvement of people of all ages including young people in research is now widely advocated but prioritisation of research topics is still driven largely by professional agendas. Evidence from adult literature has reported a mismatch between a researcher and patient generated list of research topics. There have been no studies to date exploring the priorities of young people wit...
متن کاملStudy protocol: Determining what young people with rheumatic disease consider important to research (the Young People’s Opinions Underpinning Rheumatology Research - YOURR project)
PLAIN ENGLISH SUMMARY Involving young people in research about their health is increasingly recognized as being important to make sure that research is focused more on the needs of young people. However, at present, ideas about what should be researched and found out mainly come from researchers and health professionals like doctors and nurses rather than young people. Therefore, in the past, y...
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ژورنال
عنوان ژورنال: Archives of Disease in Childhood
سال: 2018
ISSN: 0003-9888,1468-2044
DOI: 10.1136/archdischild-2018-315735